Useful Links
Useful links in the North East
New Hope North East is a grass roots community voluntary organization with the aim of breaking down barriers which prevent disabled children, young people and their families from accessing available social, educational, economical, health and wellbeing provisions. Our initial step and focus under the current project, "Breaking Barriers - Opening Doors" is to reach out to disabled children/young people and their families from BME community, effectively engaging them and provide them with support in order to increases their participation and involvement with service providers and the wider community, have their voices heard and their needs met.
Website: www.newhopenortheast.co.uk
Email: newhopenortheast@gmail.com.
Kayaks - South Tyneside Kids and Young Adults Club
Kayaks is a special needs voluntary support group which meets at weekends. The Group consists of a dedicated team of volunteers. Kayaks is an independent group which relies on donations and sponsors to provide a wide range of fun and recreational activities for special needs children, teenagers and young adults. The group provides practical help, support and advice from personal experience on “special needs” related subjects for parents and carers.
Daslne is supported by the Children's Foundation. For over twenty years, The Children’s Foundation has been committed to allowing all children in the North East region the opportunity for a happy, healthy and safe life.
When your child is in hospital you may be trying to cope with a whole range of issues and feelings. You can talk to Contact A Family about anything, no matter how big or small.
Some of our families have mentioned that they have found this product useful.
http://www.autism.org.uk/gp#Achecklist for GPs
This a useful set of advice from NAS to help GP surgeries be more autism-friendly.
http://www.rcgp.org.uk/clinical-and-research/clinical-resources/autistic-spectrum-disorder.aspx
The final page gives some ideas on how to make the GP surgery 'autism-friendly'.
https://www.newcastle.gov.uk/education-and-learning/special-educational-needs
Visit Newcastle's Local Offer where you can find information, advice and support for children and young people with SEND and their families.
Newcastle Disabled Children's Register
Being part of this Register will give you and your family the chance to comment on the services you do or do not receive.
North East Special Needs Network
The Network supports families with disabled children/young people from birth to 25 years.
This a support network for parents, careres and families of children with disabilities.
BAAGS has purchased a luxury eight-berth caravan, situated at Berwick Holiday Park, which is available to hire for short breaks, holidays and respite by people with autism and their families. For more information, call 01896 668 961, email baagsmail@yahoo.co.uk or write to 1 Cotgreen Road, Tweedbank, Galashiels TD1 3SG.
This society offers a wide range of servies to families living with autism throughout the region.
The Toby Henderson Trust (TTHT) is an independently funded charity focused on early intervention in autism. Their experienced and expert team work with autistic children from as young as 2 years old up to 18.
www.cerebra.org.uk/English/gethelp/helpinyourarea/northeast/Pages/default.aspx
Further information about help in the North-East.
Sunderland Disabled Children and Young People
This group is specifically for children and young people living in Sunderland who are disabled, have special educational needs or a long term health condition, and their families.
Support for families in the County Durham area
The Tyne Gateway Trust support parents and young people to understand the new Education, Health and Care Plans (EHCP). They can also support parents with submitting their views and will accompany parents to relevant meetings. This is a free independent service open to people transferring from the old system to the new, for anyone who would like to request a new EHCP or if they need support understanding the process or where to go next for any legal advice.
Useful links in the UK
Early Support Programme for Families
Early Support works to ensure that services are better coordinated, with a key working practitioner who can offer a single point of contact, coordination and support where families need it. It focuses on ensuring that service delivery is child, young person and family centered and that services and practitioners work in partnership with children, young people and their families. https://www.gov.uk/help-for-disabled-child/early-support-programme
Department of Health Guidance – Early Support Programme – Information on help available for parents and cares of diasbled children aged 5 and under.
Council for Disabled Children - is the umbrella body for the disabled children’s sector in England, with links to other UK nations. We are the only national body that brings together the diverse range of organisations that work with and for disabled children to support the development and implementation of policy and practice. Our work impacts on over 800,000 disabled children and their families.
There is also a helpful booklet published by the Council for Disabled Children http://www.councilfordisabledchildren.org.uk/resources/early-support-information-on-autistic-spectrum-disorders
The largest UK charity raising funds for medical research that will improve diagnosis, devise new treatments and discover the causes of autism. Autistica funds the national family research database ASD-UK and also Daslne.
Contact (formerly Contact a Family)
They are a UK charity for families with disabled children. We offer information on specific conditions and rare disorders.
The National Autistic Society (NAS)
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Signpost is a new web resource that has been designed to give parents and carers and people with ASD personalised information relevant to their situation. Signpost matches information about ASD, entitlements and services to the user’s profile: age, diagnosis and location.
Autism Services Directory - the UK’s most comprehensive directory of services and support for people with an autism spectrum disorder, their families, and people who work with them.
Association for Science in Autism Treatment includes a section discussing ‘autism’ stories in the media.
Research Autism’s comprehensive listing includes reviews of which interventions have been subject to independent scientific research and testing (UK website).
Free to watch webinars – new series.
More Useful Links
CDC Autism Links and Resources - Useful tips for children with autism.
Temple Grandin's Teaching Tips - Useful tips for children and adults with autism - Temple Grandin
Sibs - Sibs is a UK charity representing the needs of siblings of disabled people. It includes pages for young siblings aged 7 to 16 years, as well as pages for parents.
www.youngsibs.org.uk Young Sibs is an online support service for brothers and sisters of disabled children and young people. It is for siblings who live in the UK and who are under 18.
Cerebra - Various information and advice from Cerebra.
- Parent Guides - Cerebra publish a series of guides and factsheets to help families with common problems they may be facing. They offer comprehensive, up-to-date advice and research-driven strategies to help families deal with a wide range of issues.
This Trust hosts a link to the modules for the Inclusion Development Programme, self-training for education staff to work more effectively with children with autism in school
Independent Panel for Special Education Advice providing advice for parents of children with special educational needs.
www.familyfund.org.uk – the Family Fund helps families with severely disabled children to have choices and the opportunity to enjoy ordinary life. They give grants for things that make life easier and more enjoyable for the disabled child and their family such as washing machines, hospital visiting costs, computers and holidays.
www.carers.org - providing access and signposting to information for carers.
www.carersuk.org – Carers UK is a campaigning, policy and information organisation for carers.
Challenging Behaviour Foundation provides information and support for parents/carers/professionals caring for individuals with learning disabilities.
A new quarterly magazine for parents of young children on the autism spectrum. You can view a sample copy of their quarterly magazine here – Download your sample copy here!
www.sleepscotland.org provides information and support for parents/carers/professionals about sleeping difficulties in children with ASD.
NHS Education for Scotland. This on-line learning resource on ASD is designed for any professional who is working in the health care system at the primary care level (e.g. General Practitioner, Allied Health Professionals, Dentists, Opticians, Public Health Nurses, Practice Nurses and Dental nurses).
